Today is Monday, September 29, 2008. I was talking with my mom yesterday and asked her why none of my family calls, texts, or e-mails me to find out just how their cousin or great-nephew Trystan is doing. Guys, I am not mad, but the cancer situation with him is just as serious today as it was when we found out on April 10 of this year. It hasn't gone away and with the exception of mom, Mariah, Raina, my local friends, Charla, and my ex in-laws, nobody has tried to contact us "just cause". I get so scared at times and I dream thatI am gonna wake up on the pull-out couch beside my beautiful angelic son and they are gonna tell me that there is nothing else they can do for him. I mean, he had 10 weeks of hard chemo-therapy, then a complete bone removal and replacement, where they made incisions down the outside and inside of his leg, literally peeled him like a banana to complete the placement of the cadaver tibia with metal plates and bolts. He was also told that he would not be able to twist his ankle around because they had to fuse the bone together at that specific joint. We watch him hop but mostly crawl around the house to get to where he is going. He is such a beautiful little person. He thinks very positively that he is gonna be "normal" again one day. I mean, his description of fun is a new video game, the dogs that they let visit him in the hospital for about 10 minutes, the "HOT" UK cheerleaders or dancers that visit, getting to eat at a Japanese Steak house from time to time, me pushing him as fast as I can in his wheelchair for as long as I can until someone sees us and acts like we are retarded or something-----then we just bust out laughing, then there is the time when I passed gas and about 5 seconds later, the nurse entered and Trystan thought that telling her it was me was just hilarious and "Esther" thought it was pretty funny also.



I now have no job because someone decided that taking time off for Trystan was unacceptable. So now my job consists of living with Trystan at the hospital when admitted, at home with Trystan and Keegan when he's well enough to sleep for 4 days in a row. So far, we are not homeless and I am still able to leave the hospital at any given time to run to O'Charley's for potato soup, Wendy's for bacon cheese-burgers, Rally's for seasoned fries, Arby's for a melt, Sonic for a foot long chili-cheese dog, home to cook catfish and cheese grits, Taco Bell for quesadillas or soft tacos, Logan's Roadhouse for a steak and baked potato, order Chinese delivery consisting of General Taos chicken, egg drop soup, and steamed rice, to Kroger to pick up 3 cans of Vegetable Beef Soup at Hand, and the list goes on and on-----in other words anything that he thinks he might be able to eat I get even if he only takes one or two bites of it, I don't care, as long as he eats at least that much, it makes me feel better, especially when I see his small little body needing nutrition to grow bigger and stronger. One night, he had thrown up so much that I could no longer keep my eyes open long enough to clean up anymore, and when I woke up, Trys was asleep with his head hanging off the bed over the tub to which he had been throwing up in. After shedding a few tears because of the pitifulness of the situation, I laid him back in the bed, cleaned him and the tub up, and sat there wide awake waiting for the next episode.



We have endured as a family a few tragedies to include first, the loss of Caprece, who was a wonderful mother and person, then I made it through Melanoma, Jacqi made it through breast cancer, but is still having other challenges, Grandmommie not being the Grandmommie that we just knew would always be driving and visiting us forever, and now Trystan. I try not to question heavenly father, but it sure would make my heart feel better if he would have let it be me instead of my baby who desperately wants to play baseball and ride a horse. He turns 13 Ocotber 6 and is also admitted for chemo-therapy on the same day. Most 13 year-olds are begging to go to the movies with friends, school dances, etc. But not our Trys. He just wants to have a family dinner with cake, presents and money for his birthday.



Then there's Keegan who seems to get left out, but I try my best to do for him and include him in as much as possible. Mariah and Tim do with him what I can't.



Oh, and I surely can't forget our handsome Brannon. He is serving our country in the United States Navy. He has turned out to be a great person. He helps me out more than his own father could ever even start thinking about doing. I am so proud of him. He will be stationed in Fallon, Nevada, by the middle of October.



I am just starting this blog and am trying to put some pictures on here of the family and the happenings.



I love you all MORE.......................................



Our address is 532 Southbrook Drive

Nicholasville, KY 40356



Phone Numbers: UK Children's Hospital (859) 323-5936

Home phone: (859) 305-6452

Cell: (859) 402-4761



E-mail: rashelj7@windstream.net